Disease VS Diagnosis

Trusting in God's path. (May 2013)

Trusting in something bigger. (May 2013)

I have come to the realization that for the last 16 months I have only faced my disease (cancer), rather than coming head on with my diagnosis. This is not necessarily a bad thing, and for me, it has been beneficial to my fight.

Until two weeks ago, I did not want to know the details of my diagnosis. I knew that I had been diagnosed with a gnarly type of cancer called Large Cell Neuroendocrine Carcinoma of the Cervix, but the statistics did not matter to me. I felt that if I knew the ins and outs of my diagnosis, I would be brought to my knees in debilitating fear. After all, what I had been told already frightened me. “Rare. Poor prognosis. Less than 100 women worldwide have ever been diagnosed. Aggressive. Resistant to treatment. Recurrence is probable.” In fact, this diagnosis is so rare, there is only one doctor with any knowledge about it. And admittedly, he doesn’t know much. Those words gave me a sense of what I was up against, and I wasn’t ready to find out what this beast really was. I knew it’s identity, but didn’t care for it’s traits. Some may call this naive, but I assure you, this was my version of coping. I was protecting myself in the midst of the most weakest moments in my life. Had I learned the cold, hard facts about my diagnosis, I might have been crippled in times that I needed to pick up my shield and stand firm.

Recently, I had an overwhelming sense that I was supposed to know more than just this beast’s name. I felt ready. Thus began my search. Previously, I had been told by several doctors that there really is not much research nor information about the specifics of my diagnosis, and that if I was interested, I could look at studies of lung cancers. Apparently they behaved similarly. However, instead of investigating cancers similar to mine, I wanted to know more about LCCC (Large Cell Carcinoma of the Cervix) specifically. I came across a helpful website created by my fellow “sisters” in this fight and the doctor studying it. Upon entering, I felt nervous, apprehensive, anxious… and ready. As I clicked on the “Education and Information” section, I knew I was turning the key to the door of reality. I began reading. What is it? Who gets it? What are the symptoms? How is it diagnosed and treated? And lastly… what is the prognosis? I paused for a moment and told myself, “Stop reading. You don’t need to know.” Yet as I was repeating these cautionary words, I could not stop my eyes from continuing on through the statistics. By the end of the section, I was relieved it was over. Relieved that I finally knew why my doctor cried after giving me this LCCC diagnosis. Everything that I had been told had been confirmed. This cancer is a jerk. Don’t get me wrong, all cancers are, but this one is the bully in the classroom that won’t give up.

My heart still races as I share this experience. My human flesh is fearful and doubting. I’m not ready to die. I have an overwhelming number of things I still have yet to do here on this Earth. I have dreams, desires, and goals.

Yet, with these feelings of fear, my hope is in something much bigger than my diagnosis. Someone exponentially larger than this mere irritant called, cancer. 

From the beginning of this journey, I have stood firmly in the statement that statistics are just numbers. They don’t matter. My life and death will not rely on numbers that people have put together, no matter how much or how little their research shows. My life and death are reliant on my Lord. He has the end say. He directs my paths. He declares when the fight is over. Not the doctors. Not a website. Not a percentage. Not a number. I cling to my God’s statistics, and through Him I can be healed, no matter the prognosis. Statistics didn’t matter 16 months ago, so why should they matter now?

Often we get trapped in what the world is telling us. Labels, titles, and diagnoses. We forget who has the first, middle, and last say of our lives. No matter how vast my doctor’s knowledge is, my God’s knowledge is incomparable. Our hope gets caged in the confines of a statistical box. We think that if a doctor tells us something, it must be true. While my intentions are not to undermine the immense research and knowledge that our incredible doctors possess, I’m simply saying there is someone higher than this. Often, in our flesh, we cling to the circumstance. Instead, we should be clinging to the promise. Clinging to The Creator, The Sovereign Director of our lives. Clinging to the hope for something greater than this. And that is what I’m choosing to do. Since diagnosis, I have committed to standing in faith, having hope, and embracing joy. That doesn’t change now that I have read the statistics. If anything, it has concreted my faith, hope, and joy.

Numbers vs God. Guess who wins that battle?

Standing firm in God's statistics. (May 2013)

Standing firm in God’s statistics. (May 2013)

Jeremiah 15:5-8 (MSG Version)

“Cursed is the strong one who depends on mere humans, who thinks he can make it on muscle alone and sets God aside as dead weight. He’s like a tumbleweed on the prairie, out of touch with the good earth. He lives rootless and aimless in a land where nothing grows. But blessed is the man who trusts me, God, the woman who sticks with God. They’re like trees replanted in Eden, putting down roots near the rivers— Never a worry through the hottest of summers, never dropping a leaf, serene and calm through droughts, bearing fresh fruit every season.”

The Why

Many people initially respond to trauma or heartache by asking “Why!?” Whether someone you love passes away, you didn’t get that dream job, or things just didn’t work out…more common than not, it’s “Why me?!” I challenge you to be open to hearing the answer. In some moments, God may never reveal it to us; However, if you pay close attention to what He is doing in your life and around you, you may get a sneak peek inside His purpose.

It would be easy for me to ask, “Why?”, throughout the ups and downs in my current adventure. I am human and the fact is, I hate that I have cancer. I hate that I have to endure months and months of grueling treatment. It would be easy for me to ask, “Why did you allow this to happen to me!? I’m young! I have so much going for me.” And more often than not, we are faced with that thought, “Why?” While I have only once let that word slip from my mouth, it’s hard to not have that lingering thought bury itself in my subconscious as a cancer patient.

I am learning that the less I feel, “Why me?!”, the more I learn the reasons for my story. A wise woman once said, “Don’t focus on the problem, fix your eyes on the promise.” Let that sink in. It’s powerful.

There have been several moments in my journey that God has taken me behind the scenes to see what’s really going on. It’s as if He’s saying, “Stephanie, you want to know why? Check this out. You’ll be amazed.” And it’s true. In all things God wants the glory, and I believe my story is no different. No matter what, God will be glorified. And it’s an honor to carry this torch and spread hope for Him.

Today specifically has been a day where I got to peek behind the curtain. In fact, I pulled up a [chemo] chair and watched it unfold before my eyes. This morning, Matt and I woke up bright and early to prepare for another chemotherapy day. As we were on our way to the hospital, my anxieties slowly dissolved. And once I walked into the room where all of us cool kids get treatment, I noticed one lady. Only one. This is extremely unusual, as there are at least eight chairs for patients. Any lingering discomfort fell aside, and I sat down in my usual chair which happened to be next to this beautiful woman. Soon, we discovered it was her first time receiving chemo. After introducing ourselves, we began to talk…and talk…and talk. Divine appointment? I emphatically say “YES!”

I believe that we are each given a story for bigger reasons than ourselves. We interact with others on a daily basis and encounter people who need to hear hope through every situation. I still hunger for hope, and have learned that my true hope comes from Him alone. But for those of us undergoing trials, be aware that you are a vessel. You are being used to share and help others through similar storms. Today, I was able to speak truth, life, and hope to someone very vulnerable and new in her journey. In speaking with her, I saw strength, determination, courage, and bravery in her eyes. She has a genuine spirit full of joy. We bonded immediately, and I look forward to where our journeys will take us in our friendship. As we left, I gave her a hug and shared my perspective of a cancer diagnosis and the battle to victory. “It’s going to suck. I will not lie to you. It’s going to be extremely hard and you’re going to have horrible days. But, be encouraged. Along with those bad days, there will be great ones. You can and will do this. Allow yourself to grieve, but focus on the positive and on overcoming this thing. It’s going to happen.” And she responded with tears in her eyes, “You are amazing. You have made this whole mess seem a lot less scary and much more hopeful. Thank you.” <–THAT, my friends, is the “Why.”

While leaving treatment, I was overwhelmed by the sense of joy and fulfillment in my spirit. Sometimes I yearn to know the bigger picture. I yearn to see the path that God has put forth for me. But, I am thankful that I do not know it all. I am thankful that He gives me blessings along the way. I am thankful for the unexpected surprises. I am thankful for a five-hour conversation with a stranger, who is transforming into a friend. We are going to be “chemo buddies,” we both agreed. I am thankful that she is extremely well-versed on all things baseball (Matt’s favorite sport), for she kept my husband entertained and captivated the whole time. I am thankful that God answers the “Why.” Who knew that you could discover another piece of the bigger picture whilst walking out of chemotherapy treatment!? (Proof that He shows up anywhere!)

It’s so empowering and fulfilling to know that my story is making a difference. I thank each and every one of my readers and dedicated followers for supporting my journey and rallying beside me to kick cancer’s ass. I am encouraged and deeply humbled.

The truth is, cancer sucks. There’s no way around it. If you read my blog, you know I am transparent in sharing my rough days. But those who read, also discover that I make a conscious decision to choose joy. I choose happiness. I choose life. I choose to be above my circumstance. I choose to fight. I choose to be a cancer survivor.

1 Corinthians 2:10-13 (MSG Version)

“The Spirit, not content to flit around on the surface, dives into the depths of God, and brings out what God planned all along. Who ever knows what you’re thinking and planning except you yourself? The same with God—except that He not only knows what He’s thinking, but He lets us in on it. God offers a full report on the gifts of life and salvation that He is giving us. We don’t have to rely on the world’s guesses and opinions. We didn’t learn this by reading books or going to school; we learned it from God, who taught us person-to-person through Jesus, and we’re passing it on to you in the same firsthand, personal way.”